Sunday, January 5, 2014

New Year's ... Revelation?

It’s a new year and I have no real medical maladies to report. I had a lymph node flare up at the beginning of last week. It was tender and had me worried for a couple of days. I self-diagnosed it (not using any Internet symptom checkers) as Monomumpalosis, a cross between mono and the mumps, but it went down and things are back to normal. And yes, I totally made the word Monomumpalosis up. I do have a check-up with one of my oncologists later this month. I will tell her about my Monomumpalosis episode, but I really think it must have been sinuses. I am proud to say that I’ve lost 37 pounds since July. That’s a plus – even though it’s a minus. 

Since there isn’t any weird junk going on with my body lately, I’ll tell you what I did after church today. Why not?  It’s my blog and I’ll write if I want to.
 
After church this morning, my dad was looking through an old 1978 church directory from when we went to Southside Baptist Church. I was about five or six, depending on the time of year it was published. As I looked through the pages, there were so many people I didn’t recognize or remember. We left Southside and started going to Bethlehem Baptist in 1980, so it wasn’t surprising to me that a lot of the faces and names weren’t clear to me.

Of course some faces were familiar to me. I recognized Bro. Steve, who is at present graciously preaching in the interim at Bethlehem until we are able to call a new pastor. He had a full head of hair back then. Looking back through the old directories of Southside sparked an overwhelming feeling to reminisce through the pages of Bethlehem’s directories.

I think the first one we got in the early 80’s was missing. It’s in a box somewhere no doubt, but because of its absence my look back at Bethlehem began with the 1986 directory. To give to you a time frame that was the start of my freshman year in high school. I looked through almost 30 years of directories. Now obviously there isn’t a directory for every year, but let’s say there’s one for every five years or so and that’s still quite a few pages to thumb through.

I started looking at how certain individuals had changed over the years. I saw many faces that are no longer with us in life and some that are no longer with us for other reasons. I saw kids I grew up with that have either moved on to other churches and/or now have families of their own.

I looked at choir pictures, drama pictures, youth pictures, pictures of how the inside of the buildings have changed. So many changes. Hairstyles, glasses, clothing and in some cases the amount of makeup that is/was worn. Then I started looking at the staff pages. I noticed Janice Curry in every staff page. She is as lovely as ever. I noticed David Headley in every staff page. His smile is just as bright as ever. But what struck me the most was that Bro. David Hughes was in every staff page from 1986 to 2011. 2011 being the last year Bethlehem has published a directory.

As the changes in fashion, decoration and even people hit me, the realization that the next time Bethlehem Baptist Church publishes a church directory, David Hughes and his family will no longer be within its pages. 

Now anyone going to Bethlehem at present and even Bro. Hughes himself might say, “Well duh! He’s been gone for a year now.” And I would have to agree with them as they give me a V8 smack in the head. But here is the revelation brought to the forefront of my mind when I look through these directories:

David was my youth minister from grades 8-12. Although he never knew it, he guided and directed me through much of the teenage turmoil I overcame.

When I moved on to the College and Career class, he too moved on to be the Minister of Education, where he and his wife, Carol, who was my Sunday School teacher, both taught me how to rely on and how to apply God’s Word in my everyday life. They explained the meaning of being a Christian and what commitment and sacrifice meant.

I sat for their kids and spent time in their home.

I planned events with them, ate dinner with them and went on church mission trips with them.

They counseled me, consoled me and consulted with me.

They have protected, defended, prayed for and loved me.

By the time David became our pastor, I had already learned so much from him and Carol. It seems as if every time I grew, their roles in the church changed and were there to help me through the next set of problems with words of wisdom, comfort and acceptance. Perhaps that was God’s way of making sure that I found the right path to continue on my spiritual journey by having these two extraordinary people accompany me. 

David and Carol have been two of the biggest influences of my Christian life. When he announced his retirement at the end on 2012, I smiled, I encouraged and congratulated on the outside, but on the inside my heart broke. I knew that he and Carol had to do what was best for them. The time was right and logically it made sense. Emotionally though, it tore me up. The two rocks I leaned on were leaving. How was I going to get through the next part of my life without their direction?

The thing I realize now is that all the years I spent learning from them, listening to them and being nurtured by them, was also God’s way of preparing me to let go of them and be the friend to them that they have always been to me.

It’s taken me an entire year to be able to look at the situation objectively. While I don’t get to see them as often as I would like, you can be assured that I keep in touch on a regular basis. They still accept me into their home and I still can contemplate life’s problems with them. This isn’t meant to put anyone on a pedestal. That would be unfair, but the fact remains that they are very special to me and always will be. No amount of distance can ever change that.

There are many people in my life who have affected me in profound ways who are just as special to me. Perhaps, I’ll write something about them in future. One thing is certain – God has placed very special people in my life for a reason. Sometimes you don’t understand why until years later and sometimes you figure it out right away, but it is always important to let them know they are loved.

A lot of depth from looking through a church directory. The memories are precious, the people are special, but God has always been at the center of it all.

-Kat
1 Peter 5:7

Tuesday, October 15, 2013

Sleep Studies ... Junk Science? Who Cares? I've Been in Remission 4 Years!!!

Let me just say how really annoying it is to have to switch to a different web browser just to write a blog. Really? Get it together Internet Explorer. Until then, Mozilla is my home. I digress ...

I have a lot to say so I'll do my best to convey the proper emotions in my Reader's Digest version of events. To quote Inigo Montoya, "Let me 'splain. No, there is too much ... Let me sum up." For those you don't know who or what I'm referring to, shame on you. A perfect 80's reference and you missed it. Now go look it up while we wait ...

First and foremost, today is a big day for me. Today, I have been cancer free and in remission for four years!!! Woot!! It's been a long journey thus far and I'm sure the road won't be any smoother in the future. Not because I fear I'll get sick again - even though I do. No, because what I didn't know until having gone through it is that half the battle is in the getting better. The other half is staying well. There is a lot involved in staying well. Way more than you could ever realize. Anyone getting over a major illness knows exactly what I'm talking about. Don't misunderstand, I'd rather be on this side of the fence. I'm very grateful for everyday I'm given and will gladly pay everything I have to stay well. I'm just merely pointing out that your journey doesn't stop once the illness is gone.

I know an alarming amount of people who right now at this very moment are going through their own health struggles. I don't want to name anyone by name, but you people know who you are. I just want to encourage each of you to stay the course and stay strong. Don't let your illness get the better of you. My thoughts and prayers are with each of you.

Now on to the sleep study. Or should I say studies. They made me have two. Ugh! I would like to formally lodge my complaint and go on record saying that I think (just me - my opinion only) that sleep studies are junk science. Not for any other reason but that if a person can't sleep in a controlled environment like the one I was in, then what the heck are they studying? If they called them sleepLESS studies then I might be more inclined to get on board.

I had this long, drawn out diatribe on the subject, but have since decided to cut it down to only a few paragraphs. You can thank my mother for that one.

Like I said last time, I know a good portion of you reading this have had a sleep study and as a result probably have a CPAP machine and you love it. I'm happy for you, but for me the sentiment is not the same.

For those who have never had a sleep study, dig this:


This is what you  have hooked up to you in order for them to do a sleep study (the wires not the guy). This picture does not even give you a full spectrum of what you're hooked up to either. You don't see the wires hooked up to the legs or the chest or all over the back and top of the head or the one behind your ears. Nor do you see the mic that is wired to the throat. Or the CPAP Machine.


Regardless, there I was with a mess of crap hooked up to me and I'm told I had to go to sleep at 9:30 p.m. There is a camera in the room to watch me, an open mic in the room to hear me and a motion detection device that I'm not even sure what that is for. My next thought, "Wow. Freaky freaks watching me sleep." Think about it. If you were watching someone sleep anywhere else you'd be arrested, but some how in a "sleep clinic" it's legal? Nah, I'm not buying it.


I was uncomfortable, not the least bit tired and the guy says, "Lights out. And by the way, you need to start out sleeping on your back."

Whoa! Hold on there Babaloo! I don't sleep on my back. I never sleep on my back because it makes my back hurt. A hurt back makes Kathy a mean person. To be fair, I know this about myself - THAT'S WHY I DON'T SLEEP ON MY BACK. I tried to gingerly point this out but he wasn't hearing it.

He flipped out the lights, went to his freaka - monitoring - station and the study supposedly began. Except that he kept coming in every stinking 20 mins. and kept pulling the monitor leads off my body and putting down new ones. He did this several times. Enough that I wanted so badly to ask him if he'd ever done this before.

Two hours later as he was fixing yet something else, he asked me, "Do you often have bouts of restless sleep like this?"

Really? I mean did he just ask me that? I must say it's at this point that my sarcastic nature came out. I did pretty well up until that point. I replied, "Well let me think. I don't often have a hundred wires stuck to me in various places all over my body, let alone a camera that watches every move I make, a motion detector doing who knows what, an open mic that listens to every sound I make, an unreasonable bed time, no TV, lying flat on my back that is now screaming for a pain killer all the while some random dude comes in and out of my bedroom doing stuff to the wires on my face and legs. So no, I don't think this is a typical night for me."

This seemed to have stunned him. He then told me I could lay on my side if I wanted to. It was a shame that my back hurt so bad at that point I couldn't move.

Going through it once was bad enough, going through it twice was just crazy. The result was me having to have a CPAP machine. I stopped breathing 14.5 times in an hour which is mild to moderate. But I ask, how can you stop breathing .5 times? You either breathe or you don't. 

I've been using the CPAP for about 2 1/2 weeks now. There hasn't been a single night that I haven't ripped the thing off my face 2 or 3times and/or felt as if I was going to suffocate wearing it. Isn't that like the opposite of it's desired effect? I hate it and think it's of the devil. Mojo doesn't think much of it either. The first night I had it on and he jumped on the bed was classic. If cats could speak human, he would have said, "What the *obscene cat expletive* is that thing eating your face off?" I had to laugh but then that made me choke because you shouldn't open your mouth with a CPAP on. Really. Don't do it. I wished that I had had a camera handy though, because he looked a lot like this:

I hope that I'll eventually get used to the CPAP or that's a bunch of wasted time and money the ENT made me waste for not even coming close to helping me with the issue I went to see him for. I'm going to ask for a new ENT. I don't like Dr. I'm Not Listening to your issues. He's had two chances. I can't mess around and not have this sinus pressure thing taken care of.

But today, he's off the hook, because today marks my 4th year Remission Anniversary. Next year, I'm throwing myself a big party. Mark your calendars because you're probably invited!

Love to you all!
- Kat
1Peter 5:7

Thursday, August 8, 2013

Doctors & Mechanics



Have you ever taken your car in the shop for some mysterious noise you hear every time you drive it only to get it to the mechanics and while they have it they can’t find any issue or the problem doesn’t replicate itself? It’s frustrating as … well it’s frustrating.

That kind of is happening to me with all these doctor's appointments. I went in to the ENT to have Bogie checked out, got sent here (Oncologist), there (Hospital) and everywhere (back to Oncologist). Then got sent back to the ENT for a completely different issue (nasal polyps), only to be told that the polyps probably aren’t causing any issues with my sinuses and breathing. (Note – I said polyps using the plural form.) So now, I’m being sent somewhere else to have a sleep study done, because he (the ENT) thinks that maybe the problem is my throat – not that he looked in my throat or anything mind you. I fail to see how any problem my throat might or might not have can possibly cause sinus pressure in my head. Now I’m no doctor, but that doesn’t make sense to me.

Regardless, for the last month and a half I’ve been migraine free. Yea! … until yesterday. As I was leaving the ENT’s office a migraine hit. I kid you not. Fortunately I had someone with me that could drive. Point being, in the office – nothing. Out of the office – migraine. Then this morning when getting up I blew my nose and all I got was blood. I didn’t have a nosebleed. I just had blood in the mucus. I’m not trying to be disgusting folks, just trying to make the car analogy more relevant.

To be fair, I took Excedrin Migraine yesterday when I got home from the doctor’s office and it has aspirin in it. I have an allergy to aspirin. It’s not severe, but I have had it every since I can remember. This next statement is a common fact and I didn’t look it up on WebMD (see 2 posts ago) … Aspirin allergies can cause nosebleeds (which is why I don’t take it very often) and it can also irritate nasal polyps. So that’s three strikes for me.

Now back to the PLURAL nasal polyps. I don’t have one. I have two. Both in my cheeks or thereabouts. The ENT said that nasal polyps are normal, non-cancerous and more people than you realize have them and don’t know it. As a matter of fact, I bet half of you reading this have at least one nasal polyp. Of course, half of you reading this are from or live in the Ohio Valley, so really that was an easy guess. He said he didn’t think that they were causing me any distress, but he still wanted to look at some older scans to see if he can determine how long I’ve had them. He’s working that out with the hospital.

In the meantime, I have to have a sleep study. This is one of the main reasons why I have avoided going to an ENT in the first place. I don’t want to have a sleep study. Don’t misunderstand, I know many people who have had to go through sleep studies and as a result were given CPAP Machines to help them sleep better and/or to keep them breathing through the night. Most people love their CPAPs and I think it’s awesome that it helps those people. But I don’t feel like my problem has anything to do with that. Not saying I wouldn’t benefit from it, I just don’t think that’s the problem. Again, I’m not a doctor, but you know when your body is trying to tell you something. I’ve done my very best to interpret that “something” to various doctors and I feel like I’m going in circles or at the very least my car is in the shop and the mechanic can’t find anything wrong. Oh and don’t forget the big whopping charge you get every time the mechanic hooks your car up to the thingy that does the diagnostics. Yeah, that’s me and the all the doctor’s visits.

Maybe I just need to move to Arizona or New Mexico. Sure it’s like 500° in the summer, but it’s a dry heat. Yeah, I risk spontaneous combustion with heat like that, but if I could breathe while I’m combusting then that seems like a fair trade off. Of course, Mojo wouldn’t like the move so alas I’m stuck with the Ohio Valley and crappy sinuses and allergies. I love my home state of Kentucky, I just wish that the climate was more like Irvine, CA where they think 65° is a cold front and 80° is a heat wave. I just said that last part for my friend Karolyn’s benefit. Wooooooooooooo!

I’ll keep you posted as The Saga of the Ghastly Gasping unfolds. Or maybe it’s The Ballad of Bad Breathing. Whatever.

Peace Out,
Kat
1 Peter 5:7