Wednesday, February 4, 2015

2015 - A Rocky Start



So … how’s the year going for everyone? I know some peeps not too impressed with the direction of 2015. I’ve just added myself to the list.

I had my yearly checkup with my survivorship oncologist. Unfortunately, the news wasn’t so great. It seems that I have some stress related health issues. Sometimes stress can be easily managed, but it appears as if my issues are being compounded or aggravated by a possible under-performing thyroid.

Most people who see me on a regular basis know that I have been dealing with a lot of fatigue in the latter half of last year. I’ve also been dealing with jaw, neck and throat pain/fatigue, extreme sensitivity to cold, muscle weakness, stiffness and swelling and brain fog.

If I do have an under-performing thyroid, then this would explain a lot of health issues. It makes me feel better just knowing that this isn’t all in my head. The larger part of the issue is that it could be – BUT PROBABLY NOT – cancer.

The reality is that my thyroid was in the field of radiation when I had Hodgkin’s disease. Plus, every time I have a CT scan, they inject a dye in my IV. Both of these things put me at a greater risk than average for thyroid cancer.

I’ll restate though – I DO NOT THINK IT IS CANCER. I will continue in this line of thinking until I’m told otherwise. No need to worry over something that may not be. I do think it is prudent to prepare myself and study, but worrying is not an option. They are already testing my thyroid levels and I have a follow-up appointment in three weeks. I don't like having to wait so long for results, but then I figure if it is something more serious than a thyroid on the fritz, then I will be notified.

All I can say is that this is a pretty lousy start to my year. 2015 – Boo hiss and many frowns upon you!

That being said, I know the power of prayer and I know that I have many prayer warriors out there praying for me. It is the best thing that I could ask for. I also know that my friends that are not religious are sending me their most positive vibes. I thank them for that. To say I am lucky is an understatement.

The plan right now is to simplify what I can and listen to the doctors when they give me advice and instructions.

Until I have something else to report, I guess that’s all I have to say except:

“Cast all your anxiety on Him because He cares for you.” 1 Peter 5:7

Much love to all,
Kat

Wednesday, October 15, 2014

5 Years in Remission!!! Yeah, Baby!!! YEAH!!



Today is a huge day for me. Today I have reached my 5-year remission mark. However, that is not to say I’m cured. I’m far from being cured. My doctor told me five years ago that the cancer might come back. And while at times that can feel like I’m walking around with a ticking time bomb ready to go off, it also helps me to live each day to the fullest and be grateful for all the blessings in my life.

There are concerns. The chemo and radiation have left lasting effects and as the years continue other problems arise because of the treatments I’ve gone through. I have to stay on top of aches and pains and colds and sinus infections. Whenever something isn’t feeling right, the doctors are not in a position to rule anything out until the proper tests are performed. The fear that cancer cells might have been left in my body and are growing is all too real and ever-present and sometimes looms over me.

Blood tests, CT Scans, X-Rays are now part of my normal vocabulary. I worry about my brother as siblings of patients with Hodgkin’s disease have a three times higher risk than the general population.

Cancer is unpredictable and there is no guarantee and the best I’ll ever get said from a doctor is, “There is no sign of the disease.”

All this being said those patients who were staged like me have a 90% survival rate at the 5-year remission mark. That makes me want to do the “Happy Kathy Dance”. That doesn’t mean that I won’t get sick again, in fact the older I get the more likely it is, but for now I’m doing great. I have much to be thankful for. While I am dealing with a few health concerns at the moment, none of them have been tied to cancer – at least so far they haven’t. I’ll go into that later on another blog. For now, I have a birthday to celebrate!!

Love to you all,
Kathy
1 Peter 5:7

Friday, September 26, 2014

About Last Night ... Diaries of an Insomniac



11:00 AM – I snuggled up comfortably in my cocoon of blankets, drifting off for the much needed sleep that had eluded me most of the week. I was warm, safe and quickly fell into slumber.

1:04 AM – I awoke thinking I was too comfortable for my own good. Oh. I realized why I was so comfortable. I fell asleep without my CPAP. How nice it was for the two hours I slept without it, but knowing that’s probably why I woke up, grabbed the mask, begrudgingly placed it on my face and fell right back to sleep.

3:11 AM – I was awakened by a thunderous crash behind me. My eyes popped wide open, but the rest of me remained still. There was someone behind me. As the haze of sleep is lifted and adrenaline kicked in, I scanned the darkness for shadows moving across the wall. I saw nothing, partly because I’m blind without my glasses, but mostly because the person behind me was waiting to strike. So this is it. This is how I’m going to die. I couldn’t even try to bolt as I was tethered to that God forsaken CPAP. I knew that thing would be the death of me
.
I wondered who it was. Freddy Kruger? Jason Voorhees? Michael Myers? Pin Head? Or any number of 70’s and 80’s movie monsters my mind could conjure. If it was Freddy, then I was still sleeping and would die in my dreams. Not a bad way to go I suppose. If Michael, I knew there was sibling out there my parents never told me about holding a grudge for some unexplained reason. If Jason, I can’t imagine why. I only went to summer camp once. And Crystal Melton put my luggage on the wrong bus, so honestly, who was really the wronged party in that situation? And if Pin Head, well I’m not sure what that deal is. It’s 3:15 in the morning and I don’t even remember that movie plot.

I decided to turn and face my fate. I rolled over and saw … the cat? Mojo was standing on the nightstand, stalking what could only be described as some heinous beast. Relieved that I wasn’t being confronted by an axe murderer, I took the stupid CPAP off and turned on the light to investigate the situation further. The crash was a metal tissue dispenser that Mojo knocked off the nightstand. It sat still in front of the nightstand, blocking in the hideous monster that Mojo had cornered.

Mojo jumped off the nightstand and hunted his prey as all good kitty hunters should. Whatever it was, it was large and moved fast and was under the nightstand. I could hear it moving around.  A mouse? In the house? Or a snake perhaps, coiled and ready to strike. Mojo couldn’t get to it. He was licking his chops ready to bear down on whatever this fiendish creature was. He looked at me only for a moment to convey his plan. I was to lift up the tissue box and he would smoke out our foe whereupon, I would strike. He was bestowing a great deal of responsibility on me. I nodded my consent to his plan, grabbed my weapon of convenience, otherwise known as my tennis shoe, and lifted the box.

I had the box in one hand, the shoe in the other and I waited for Mojo to make his move. He swatted under the nightstand and before I could drop the box the villainous being lunged at me. Dear God, this monster had wings and flew towards my head! I swung the shoe and connected …

My hand with the cedar chest. I think I broke it. As the blinding pain ripped through my hand, the what can only be described as a bat, fluttered off to safety elsewhere in room, mocking me and my pain. And where pray tell was the cat? Still looking under the nightstand.

3:23 AM – The tears in my eyes were subsiding, but I had a bigger problem. Having no luck convincing my partner that our enemy was no longer under the nightstand, I realized I was on my own. I scanned the room quickly trying to find the night bat. Ah ha! Over by the closet on the floor was where I found my nemesis. Only, it wasn’t the bat I thought it was. I seems that my opponent had the ability to transform itself into a … candle moth? A little candle moth? That’s what started this? I told myself that I was going to have a serious discussion with Mojo later on about the importance of not waking me up to attack a partially wounded candle moth. I took pity on the poor thing as it fluttered around in circles like a drunk squirrel high on a fermented pumpkin. I took pity on it that is until it attacked me again. This time the shoe met its intended victim. I tried to convince the cat that the situation was resolved, but he was still looking under the nightstand. I had to pick him up … Ouch! Not with the broken hand … and put him down in front of the dead moth to show him the deed was done. Mojo sniffed the moth and then reached out and smacked it with his paw. Way to kick a moth when he’s down. So not cool.
 
I reached for the tissue box that of course was empty. Cursing myself for the decision to “fill it back up in the morning” and not having the foresight to predict this nightmare, I went to the bathroom to retrieve a tissue so that the poor moth could have a proper burial, which did not include that cat scratching the carpet next to it.

When I reentered the bedroom, king of all he surveyed, Mojo sat triumphantly on the head board of the bed reveling in his perceived victory. As if. I picked up the moth, respectfully disposed of it and turned out the light.

3:35 AM – I hunkered backed down under my covers, the cat still sitting overhead, watching for the next moth I suppose, when it hit me. Migraine. Thinking I could fall asleep before any real pain hit, besides the pain in hand that is, I laid there for a few moments.

I quickly realized that the migraine was going to win out. I took the CPAP off, again, and got up to take some migraine medicine. I wandered into the kitchen to get some water to take the pills with. The migraine compromised my vision. As I opened the refrigerator to get some water the light made the pain that much worse and coupled with the lack of vision, I leaned too far forward and face planted right into fridge.

I was a little more than pissed off, by the time I stood back up. I grabbed a bottle of water, took the stupid pills and placed the cap back on top of the bottle which of course I then used as a cold compress for my face. As I walked back to my room, I didn’t envy the fat lip I was sure to have come morning … oh wait … it was morning.

4:00 AM to be precise. I entered the bedroom once again. And where pray tell was the cat? Asleep right smack dab on top of the covers and in the middle of the bed. I got in and he had the unmitigated gall to raise his head as if to say, “You woke me up.”

4:01 AM – I put the CPAP mask back on, but I drank water. You do the math. I took the CPAP mask off, again. I went to the restroom and decided that the Sandman was not going to visit me this night and once again this week I have been thwarted by the fates of insomnia.